‘Our whole world fell apart’ – family heartbroken as 44-year-old dad receives devastating diagnosis

For Sean and Claire Weldon, life was “quite normal.”

Together for 18 years, the pair met in Sheldon and still live in the area with their three children.

But while many of us may remember March 2020 as the month when the pandemic broke out and the country plunged into lockdown, it marked the beginning of a more personal tragedy for them.

Read more: Family of five forced to wash in ‘disgusting’ wet room after council repairs delay

On 4 March 2020, Sean received devastating news as he was diagnosed with Motor Neuron Disease (MND).

There is no cure for the non-living condition and it has changed family life beyond recognition.

Claire, 36, took a job at a local cafe, while Sean, 44, worked as an asbestos remover.

Now, things look very different for the pair and their kids, who are ages nine, 11 and 13.

Things look very different for the pair and their kids

“I hadn’t really heard of MND until I was diagnosed,” Claire said. “It felt like our whole world was falling apart.”

The pair got married in July 2020 – as soon as they could ease the lockdown. It was one of many things that changed since Sean’s diagnosis.

“We kept it from the kids and our friends for a while until we could get our heads around it,” Claire went on.

“But we didn’t want it to beat us, so we set out to make as many memories as possible.

“Getting married was one of them and we’ve gone on vacation with the kids. These are limited [in terms of] Where we could go because Sean is in a wheelchair. He could use a mobility scooter at that time but can’t now.

“As a family we all support each other. I am his only caregiver so it can be challenging but we work together and the kids have been wonderful.”

Sean with his daughter Briley, 13
Sean with his daughter Briley, 13

When Claire says she doesn’t want the disease to defeat them, she means it.

The 36-year-old has launched a GoFundMe to raise money for the treatment, hoping it will give her husband more time.

She said the family had been doing a lot of research on the drug from different countries and wanted to get treatment in New Jersey.

He has spoken to another MND victim who has been living with the disease for eight years through the same path.

Claire said the family was left “desperate” and explained how some people with MND can expect to live between two and five years.

For Sean and Claire Weldon, life was 'quite normal' until their diagnosis
For Sean and Claire Weldon, life was ‘quite normal’ until their diagnosis

According to the NHS, the condition eventually leads to death but how long it takes to reach that stage varies greatly.

The NHS website states that some people live with motor neuron disease for many years or even decades.

“Sean has already lost the ability to walk and move his arms,” ​​Claire explained.

“His voice is playing now. It breaks our hearts and we just want to try anything.”

Claire said she wanted to tell the family’s story to raise awareness of the “brutal” disease.

“If people can donate or even share, it’s Cure in America that could potentially give Sean extra time with his family,” she said.

“We are desperate to try anything because people with MND don’t get it for long.

“It’s been coming for two years [since the diagnosis] in March but he saw symptoms for the first time three years ago in May.”

Claire’s GoFundMePage read: “Sean was diagnosed with Motor Neuron Disease on March 4, 2020, a life-limiting dreadful disease with no cure.

“He has since lost all ability to use his body. He cannot walk or move his arms and is slowly losing his speech.

“They have three young children aged 13, 11 and nine and would love nothing more than to grow up, have kids and get married.

“It breaks our hearts to learn that there is nothing that can be done so we are doing a lot of research on drugs from different countries.

“With a little help, I have gotten information from a friend who knows someone with MND. He is being treated from the US, New Jersey.

“He hasn’t got any worse and it’s been eight years now. Obviously, it’s not a cure but could give Sean the time in which to find a cure or the extra time for his kids to grow.” Is.

“This is not a cheap option and can cost anything from £1000 to £1500 per month. It can be even more depending on which drug. [is needed] So if anyone can help we would really appreciate it. Please share ,

You can find out more on GoFundMe Here,

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